Milk Soy Protein Intolerance: A Mothers Perspective

I first learned of Milk Soy Protein Intolerance (MSPI) in the office of a pediatric gastroenterologist's office with my seven-week-old son, Max. After the first week of his life Max lost weight and was labeled "failure to thrive." As an educated mother and nurse I was devastated that this could happen.

That day in the GI specialist's office, he performed a proctosigmoidoscopy and biopsy on Max. He sat me where I could see him perform the test and told me what I would see. He said that the lining of the bowel would be red, swollen and bleeding, and it was. I just sat there and cried. After the test was over and I could hold Max, Dr. Mack told me that MSPI was indeed what Max had and that I should stop breastfeeding right away and put him on a special formula. He told me that there was a diet I could follow if I wanted to continue breastfeeding, but that it was very stringent and difficult.

Wanting to make the best choice for my son, I stopped breastfeeding that day and started him on Alimentum. The results were dramatic. After one bottle of Alimentum he slept for 2 and 1/2 hours straight; the longest he had ever slept.

After learning all about MSPI with my first son, I was more determined that ever that I would 'master' the MSPI diet and breastfeed my second child. So, I set out to the grocery store with a list of forbidden ingredients in my hand. Gradually, after many hours spent standing in the aisles of the grocery store reading labels, I began to find dairy-free, soy-free substitutes for the foods I might normally eat. All the information I collected and recipes I tried, with my husband's encouragement, were compiled into a book: The Milk Soy Protein Intolerance (MSPI) Guidebook /Cookbook which was published in the fall of 2001. We also have an informational website for MSPI: http://www.mspiguide.org.

Milk Soy Protein Intolerance is diagnosed by pediatricians, family physicians and specialists in pediatric gastroenterology. It seems to be more highly prevalent in the midwest, but throughout the country it is given different names, such as: protein intolerance, food protein-induced colitis or eosinophilic gastroenteritis.

MSPI is diagnosed through the history of an irritable infant, or colic-like behavior, poor growth and abnormal (blood streaked) stools. Some infants will exhibit frank blood in their stools. Confirmation of the diagnosis is often made with a biopsy of the intestinal lining which would show an increased amount of eosinophilic cells, eroded intestinal villi and the presence of hemorrhagic tissue.

It is thought that the intestinal lining cannot properly digest the proteins (milk and soy) therefore they are taken up into the blood stream where the body treats them like an antigen and produces antibodies mimicking an allergic response. The intestinal tract then recognizes the ingested proteins as it would an allergen and the intestinal lining reacts by becoming inflamed, often shedding blood into the stool. Some blood may be visible in stools and other blood detected by occult blood testing. The lining of the intestine, then, becomes further damaged as it is continuously exposed to these proteins.

No one really knows why the occurrence of MSPI is prevalent in the United States and especially more prevalent in the midwest region, but one of the theories has to do with our more 'sterile environment.' We, in the United States are so preoccupied with keeping our environment clean and free of germs. In other countries, especially those of the third world, infants and children are exposed to so many other more serious bacteria, toxins and allergens that their tolerance may become greater due to increased exposure. It also seems that the occurrence of MSPI is congenital; if one child has it, the chances are very high that the subsequent children will have MSPI and that it may be more severe.

Infants diagnosed with MSPI can still be breastfed if the mother adheres to a milk and soy protein-free diet. Many mothers, as I did the first time, choose to stop breastfeeding and place the infant on a specialized formula right away to help them heal faster. Then, if there are subsequent children the mother can start a milk and soy protein-free diet the third trimester of her pregnancy and continue it for as long as she wishes to breastfeed. Though there are many benefits of breastfeeding, with MSPI the avoidance of high formula cost can be the greatest benefit.

The formulas you can buy at most supermarkets or pharmacies are: Alimentum, Progestamil and Nutramigen. These formulas cost $7 to $8 per can which is a 1-2 day supply. Other more specialized formulas, such as Neocate, can be obtained from the pharmacy, or from the doctor prescribing the formula, or at a hospital. These formulas cost anywhere from $31 - $40 per day and up. Of primary issue is cost;can the parents can afford to feed their infant?

I met Chuck Stepanek in Lincoln at a legislative hearing which brought forth the issue of insurance coverage of specialized formulas in the treatment of MSPI. After I testified, he tapped me on the shoulder and handed me his card asking me if I would be willing to write an article for NNA. In the legislative hearing for LB 1047, other families testified that they were finacially devastated by the high cost of formula for their infants. Insurance would pay for the formula only if the infant was hospitalized and fed through a nasogastric tube. Unfortunately, many of these families had to experience this before their infants started thriving. The bill is still alive, but we will probably need to reintroduce it several more times, and get even more support for our cause.

Our sons are now fine; they are happy, healthy little boys. Within one year they outgrew the intolerance and could be started on whole milk. Normally that is the case, but there are a small percentage of infants that continue the intolerance into childhood. I am grateful to the care of our pediatrician who refused to call my sons screaming 'colic' and preferred to look for a cause to his pain. I feel so deeply for other parents that go through this. We were very fortunate, in retrospect, fortunate that we could afford the formula that our infant needed, that we could get him the best medical care, that he case was not more severe, that we found our what was wrong early in his life. Others are not that fortunate; it is for those that we will keep working to get information on MSPI to the public and insurance benefits to cover the cost of formula for these infants.

About The Author

Tamara Field is a Registered Nurse and works as the Coordinator for Critical Care and Short Stay at Alegent Midlands Hospital in Papillion, NE. She is also a singer, performing and teaching in the metro area. She holds a Doctorate in Vocal Performance and Pedagogy from the University of Colorado at Boulder. Nursing has afforded the opportunity to have a flexible work schedule and have great variety in her career choices.

Author of The Milk Soy Protein Intolerance (MSPI) Guidebook / Cookbook

For More Information: http://www.mspiguide.org

expert residential cleaners Park Ridge ..
In The News:

The Omoway Omo X features a modular design, obstacle detection and emergency braking, and can drive itself to charging stations, signaling the future of smart urban mobility.
PillTrek, a tiny wireless smart capsule created by Caltech, provides real-time gut health data by detecting electrolytes, metabolites, glucose, hormones, pH levels and temperature.
Learn to spot fake bank text messages with five warning signs of Chase phishing scams, including suspicious links and urgent deadlines designed to steal your account information.
Robot coyotes built on motorized cars reaching 20 mph are being deployed at military airfields as an innovative solution to wildlife threats to aircraft safety.
Explore Google Drive's strengths and weaknesses as a backup solution, including its encryption security, privacy concerns and comparison to dedicated backup tools.
As environmental challenges grow, underwater habitats gain momentum with DEEP's Vanguard, supporting short missions and Sentinel designed for 28-day stays at depth.
The new Urban Eyes safety vest features dual cameras, reflective panels and a wireless remote to deter harassers and provide peace of mind for outdoor workouts.
The $200 billion data broker industry tracks your personal details across websites, posing privacy risks that can be mitigated through data removal services.
UCC Holding has teamed up with COBOD to create desert-inspired, 3D-printed schools in Qatar, featuring dune-like wavy walls impossible with conventional construction.
Darkling beetles equipped with microchip backpacks can be guided through disaster areas using electrical signals, offering a biological solution for search and rescue.
Scammers use number porting to take control of outdated landlines still connected to financial accounts, bypassing two-factor authentication to steal funds while avoiding detection.
Twitter co-founder Jack Dorsey developed Bitchat, a privacy-focused messaging app that works offline via Bluetooth without requiring email, phone numbers or personal data.
Google is making a push to ensure its AI, Gemini, is tightly integrated with Android systems by granting it access to core apps like WhatsApp, Messages, and Phone.
A new green energy system is set to change how we capture clean power, and it all starts with the ocean. French startup Seaturns has designed technology that taps into the natural motion of the sea.
Cybersecurity researchers are warning that hackers have started exploiting flaws in chatbots to carry out AI phishing attacks.
Google has just made it easier than ever to regain control of your inbox with Gmail's new Manage Subscriptions tool.
Despite the benefits, residential power saver programs come with several potential drawbacks and concerns that have been raised by both customers and experts.
The Blackdot AI tattoo machine is quiet. It's steady. And according to early users, it hurts a lot less.
Attackers have started to exploit the very signals that users assume will keep them safe when it comes to add-ons to improve productivity or entertainment.
Located on Cerro Pachón in Chile, the world's most powerful digital camera is set to transform how we see the universe.
The innovative DQ Tower stands 28 feet tall with 420 square feet of living space, featuring floor-to-ceiling windows and premium amenities in a prefabricated design.
A new mmWave imaging system allows warehouse robots to scan and create 3D models of objects inside sealed containers, potentially revolutionizing shipping processes.
Family fraud endangers seniors when relatives exploit their trust, but removing personal data online and monitoring identity can prevent financial harm to aging parents.
A study analyzing 500,000 customer service interactions shows chatbots struggle with complex issues while human agents excel at matching customer communication styles.
Aigen's Element robot uses solar power and AI to provide farmers with a sustainable alternative to herbicides, working efficiently in cotton and soy fields.

Healthy Eating Myths Destroyed

Some of the things you think you know that just... Read More

Safely Transitioning Off Meal Replacement Plans

Meal replacements have been part of the diet landscape for... Read More

The Meat You Eat: How Corporate Farming Has Endangered Americas Food Supply

Factory FarmingThe big names in American agriculture would like you... Read More

Tips for Effective Muscle Building Diets

One of the biggest mistakes many new bodybuilders make is... Read More

How to Use Flax Seed

You can eat whole flax seeds but you need to... Read More

Chocolate Is Good For You!

Great news on the chocolate front! Chocolate is good for... Read More

Startling New Evidence: You Can Slow the Aging Process, Scientists Say

What if you could actually slow your rate of aging,... Read More

Ocular Nutrition and Eye Health Food

Understanding ocular nutrition and eye health can be one of... Read More

Eating Disorders Do Not Discriminate

Who suffers from Eating Disorders?Eating Disorder sufferers are male and... Read More

Just The Tea FAQs: Health Benefits (Part III)

The wonders of modern science continue to amaze us with... Read More

Stress and Aging - Human Growth Hormones

Modern life can be stressful. There are so many concerns... Read More

Balanced Diet: Know More on Healthy and Nutritional Balanced Diet!

In this fast paced world, good nutrition may sound very... Read More

Most of Us Talk and Think About Nutrition and Exercise as a Distant Activity to be Started Some Day!

If you do not take time to stand back at... Read More

Understanding Nutrition

With the release of the new dietary guidelines, in the... Read More

Healthy Eating Made Simple

The confusion about eating healthy and dieting will now be... Read More

Our Livers Need for Water

Although many realize that the liver has its own cleansing... Read More

Functional Foods: What They Are And How They Work

In the brain, a typical protein can live for approximately... Read More

Try a Slow-Carb Habit

Carbohydrates - found in grains, breads, pasta, and sugar, as... Read More

Fruitceuticals - The Evolution of Fruit

Since the beginning of time, everyday fruits have been known... Read More

Understanding Amino Acids and their Importance in Diet

The importance of protein in a healthy diet is well... Read More

Beware of Eating Too Much Protein

The typical American diet already provides plenty of protein and... Read More

Use Food and Focus to Gain Tons of Energy for Summer

While there are many effective ways to get more energy... Read More

Not All Protein is Created Equally

America's focus on nutritious eating began to receive national attention... Read More

Focus on Trans Fat

There's no doubt--carbohydrates have taken center stage in public discourse... Read More

3 Things You Want to Know About Cholesterol

You wouldn't judge a book by its cover, would you?You... Read More

green cleaning service Park Ridge ..